Those of you who know me know that I am a very patriotic person and generally love all things “Murrica”. Then the blog name likely made sense to you, until you saw black and white zebra stripes where red and white should’ve been. So you might be wondering “what is with the zebra stripes?”- Well, let me explain!
As I have mentioned before, congenital disorders of glycosylation, or CDG, is classified as a rare disease. And believe it or not, there are actually more than 7,000 unique rare diseases that exist in the world at this time! If you would like to learn more about CDG or any other rare diseases, this is a really great, and reliable resource: https://rarediseases.org
Now on to the zebra: The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness. As you, or maybe a child of yours, might know- no two zebras have the same stripe pattern. So like zebras share their black and white stripes, those with rare diseases share many commonalities, but have their own unique traits.
Rare Disease Day is always the last day of February, and this year was extra special as it was Leap Year AND Blaise and I were at the Rare Disease Conference in San Diego! Thought I would share this cute picture of Blaise “showing his stripes” this year!
