Switching Gears….

So a driving force behind the creation of this blog was to bring awareness regarding what CDG is and our journey. This also has been a fantastic platform to share with friends and family what has been going on with Blaise without sending endless texts or making lots of phone calls! However, I do think it would be remiss if I did not share a little bit about Blaise’s big brother, V!

Since day one, V has been the best big brother to Blaise. He used to go up to Blaise in the swing and lay his head near Blaise or place his hand on his chest. When cousins or other young kids gather around Blaise, V is always the first one there pushing through the pack to check on his little “Blaisey Boo”.

When Blaise wakes up from a nap and V realizes it before I have a chance to get Blaise out, I usually walk into the room and find this….

I could go on and on about the sweet things that V does for his “brudder”. But…before we get too hasty….let’s not paint this angelic picture of V happening 100% of the time. He still has his fair share of 2 year old moments. He can definitely be a stubborn little turd (no idea who that came from…whoops) but he is getting awfully smart, and talking constantly. He surprises me daily with some of his new tricks. Yesterday when I went to the fridge to give him more water he told me “No Mom, I have plenty.” Seriously? Plenty? Who is this kid?

He helped Carl and I last weekend with yardwork. Put on his hat (like Mama and Dada), grabbed a rake, and actually did a great job raking the pine needles into a pile! The finished product was taller than he was!

Definitely the “coolest” most recent accomplishment from V was when I walked into the play room last week, and saw a 48 piece puzzle finished on the ground. Mind you, we had cleaned up that puzzle the day before and put it away. So he got this puzzle out, and completely, independently, assembled it! He even started putting toy animals on top of the matching animals on the puzzle (see below with the gorilla and rhino).

But the most remarkable part to me, is that V finished the puzzle, and went on to the next thing to play with. He didn’t draw attention to his accomplishment, he didn’t really view it as a big deal. I think that is a charming character trait of this sweet boy. However- you know I made a HUGE deal out of this! Here he is looking so proud with his puzzle:

So there is a little update on our “V man”. One thing I know for certain is that Blaise hit the sibling jackpot when he got V as a big brother. Regardless of any diagnosis- one thing has not changed- I CANNOT WAIT to see the two of them grow up together. I am sure they will still get into plenty of trouble. Blaise seems to think V is hilarious, and V regularly uses Blaise’s giggles as permission to continue whatever ridiculous thing that he is doing. I guess boys will be boys!