Well, I am always blown away by the support and love that we receive from all of our friends and family on a regular basis. But you all made Blaise’s first CDG Day so very special! Thank you for the texts, posts, and pictures on his day! It was so great to see everyone in their green!
And of course we had to get pictures from all of Blaise’s grandparents, aunts, uncles, and cousins! V wasn’t too thrilled about our 15th try at a family photo with everyone looking!
Just because CDG Awareness Day has come and gone this year, that doesn’t mean that we aren’t still working toward making this formally recognized by the WHO! So….if you forgot to sign this petition the last time (or made a new friend who might want to sign), PLEASE do so now! http://chng.it/pwPt2gd9hd We are now on our way toward 10,000 signatures (and have ~700 left to go)!!! Thanks in advance for your support!
We were lucky enough to celebrate this day with our family at the beach! It was nice to get out of the house for the first time in awhile. We had a great time seeing the ocean, playing in the sand, riding bikes, feeding ducks, and spending time with cousins who we had not seen since February! In fact, V said it best when coming inside for bed that night. He had just gone on a bike ride with Nana, and as they walked inside he looked up and said “Nana, today was a good day.” And that it was.
It was a great day!!!!