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hear me rare

A blog about being a typical and different needs parent navigating CDG, raising boys, & life!

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List of All Blog Posts

2024
  • Sunday, March 17 Keep on Blaising…
  • Thursday, March 7 Making a Home
2022
  • Thursday, July 28 6 Months on Full Dose and Still Going Strong…
  • Tuesday, May 17 NAPA Week 2 (Part 2)
  • Sunday, May 15 NAPA Week 2 (Part 1)
  • Tuesday, May 10 Week 1 is Done!!
  • Saturday, April 30 I Think I’ll Go to Boston…..
  • Thursday, February 3 Started From the Bottom, Now We’re Here…Full Dose!
2021
  • Friday, September 17 One Month of TrailBlaising Down…
  • Thursday, September 9 They See Me Rollin’
  • Monday, August 23 Look Ma, I Made It!!!
2020
  • Friday, November 20 The Grind, the Climb, and the Landing
  • Monday, November 16 The Noni Chronicles
  • Friday, August 14 Family Vacation- 2020 Style
  • Thursday, August 13 Street Parking
  • Wednesday, July 22 Making Waves Part II
  • Tuesday, July 7 Celebrating America!
  • Friday, May 22 RECAP: CDG Awareness Day 2020
  • Wednesday, May 13 And now, a word from Dad…
  • Wednesday, May 6 CDG Awareness Day 2020
  • Monday, April 6 Switching Gears….
  • Monday, March 30 Making Waves…
  • Tuesday, March 24 Welcome to Holland
  • Tuesday, March 17 Rare Disease Conference 2020
  • Friday, March 13 What’s with the Zebra Stripes?
  • Wednesday, March 11 The Journey to a Diagnosis…
  • Wednesday, March 11 The 4-1-1

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