2020 started off rough for us, and that was several months before the pandemic hit. When my youngest son, Blaise, wasn’t meeting milestones, we started looking for answers. And boy-oh-boy did we find them! Blaise was diagnosed with what is called congenital disorder of glycosylation, or CDG for short. I hope this blog will be informative for any families facing this diagnosis, for friends and family who want to stay in the know on what is happening in our lives, for women who are called “Mom”, and more! This blog is simply going to be about facing life as a typical needs mom, a different needs mom, a wife, and whatever other “hats” I happen to be wearing at the time. Hope you enjoy! 🙂
A blog about being a typical and different needs parent navigating CDG, raising boys, & life!